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Are you living with migraine?

You might be able to help scientists uncover new solutions.

Migraine research takes teamwork.

The journey to improve migraine care starts with research. And everyone deserves a voice in that process.
That’s where you come in. 

By participating in the AbbVie Research Collaborative, you’re partnering with scientists as to help unlock knowledge of migraine disease by sharing your health data and migraine experience. Joining is easy and free.

Migraine affects more than 1 billion people worldwide.* Our scientists are on a mission to change that statistic and help improve lives. Every day they are gathering new data that could help improve treatments. You can help speed up the process by providing personal health information that gives them new insight into the impact of migraine disease on your life. 

Learn more about the AbbVie Research Collaborative

What is the purpose of the AbbVie Research Collaborative?

AbbVie’s mission is to discover and develop new medicines for patients like you. To do that, we need data from patients like you. This can help us understand serious medical conditions, like migraine, and how they affect different individuals, which can lead to the development of new therapies.

Why am I being asked to participate in this program?

Because your experience living with migraine matters. By participating and sharing your health data, our scientists get a unique lens into the different characteristics of your condition, including symptoms, triggers and sources of relief. 

Do I need to be diagnosed with migraine to participate in the Collaborative?

No, you do not need to have an official diagnosis of migraine to participate in the Collaborative or contribute to this research. If you choose to enroll in an migraine clinical research study offered by AbbVie, a diagnosis from your physician may be required for participation in the study.

What will I need to do?

You will need to join the AbbVie Research Collaborative online platform and review the informed consent form that explains this program in more detail.  Participation is voluntary; you must be 18 years old and living in the US. AbbVie hired a company named Seqster to run the Research Collaborative online platform and keep the data secure. You will need to agree to Seqster's terms of use and privacy statement to join the online platform. They can be accessed here.

Is disclosing my health data required to participate in the Collaborative?

Sharing your medical records is completely optional. If you choose to share your data, it gives our scientists a lens into your health and treatment journey to better understand this disease and hopefully unlock solutions for the future. It's important that you feel comfortable sharing your health information and that there are ways to participate without doing so.

Who will see my data?

The health data you link and share on the online platform may be accessed by AbbVie, its representatives, and/or people or companies it works with on the research, government agencies like the Food and Drug Administration (FDA), and Institutional Review Boards (IRBs) that ensure the rights of research participants like you are protected. The results of scientific research using data in the Research Collaborative platform may be published in research reports or scientific presentations and publications. In all such circumstances, AbbVie will remove any information that identifies you or reasonably could be used to identify you.

What are the benefits, risks, and/or consequences of participating in this program?

The AbbVie Research Collaborative is focused on data collection. Your health data is diligently protected from a security standpoint and will only be used for research purposes. There are, however, a range of benefits. Along with personally contributing to medical research, you'll be able to access a 360-degree view of your health on the online platform.

Will I be paid to participate in the AbbVie Research Collaborative?

There is no compensation for joining the Collaborative. However, we will notify you as clinical research studies become available, and if you are eligible to participate, you may receive related compensation for participation in the study.

How long will the program last?

The AbbVie Research Collaborative will run for a minimum of one year. At that point, we'll evaluate whether we are meeting our goals and if the program should be continued and broadened to more disease areas.

How will my data be used to advance scientific research?

Your data will be protected and used exclusively for research purposes. AbbVie researchers will use participants' data to analyze specific conditions and diseases. Each participant's experience living with a certain health condition is unique to them and, therefore, a small piece of the bigger puzzle. Opportunities for new medical advancements may be made when these "puzzle pieces" of data are examined, compared, and used for research.

Will I get the chance to participate in future clinical trials by sharing my data?

One of the benefits of the AbbVie Research Collaborative is that we can determine––based on your unique health profile––which upcoming AbbVie clinical trials might be a good fit for you. Our goal is to proactively notify you when these studies are ready to enroll so you can discuss the pros and cons of participating with a healthcare professional. However, we cannot guarantee a spot in the actual trial as additional eligibility requirements may exist. Likewise, there is no obligation to participate if you determine it's not the best option for you.

Who can I contact to learn more information about the AbbVie Research Collaborative?

We're here to help. If you have any questions or concerns regarding participating in the AbbVie Research Collaborative, please email us at [email protected].

* Source: Migraine Research Foundation

Be part of tomorrow’s solution. Join today.

Together we can develop potentially life-changing medical treatments.